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Her state bans gender-affirming care for teenagers. So she travels 450 miles for it

Veronica, 17, drove with her mother nearly four hours from her home in Iowa to visit a doctor in Minneapolis in September. Iowa banned gender-affirming care for youth in March 2023.
Selena Simmons-Duffin
/
NPR
Veronica, 17, drove with her mother nearly four hours from her home in Iowa to visit a doctor in Minneapolis in September. Iowa banned gender-affirming care for youth in March 2023.

An estimated 110,000 trans teenagers live in states that ban gender-affirming care for minors. Some travel huge distances every few months to keep getting their treatment out-of-state.

DES MOINES, Iowa 鈥 In the future, Veronica sees herself in a big city.

鈥淚 like chaos and spontaneousness,鈥 she says, and she doesn鈥檛 get much of that in her town surrounded by farmland outside of Des Moines. It鈥檚 slow and boring, she says. Matching rows of ranch houses line wide manicured streets, with SUVs parked in the driveways.

Veronica is 17. She has two more years of high school, then she can graduate and leave.

Hers is not just the usual adolescent wanderlust. This Iowa town has turned out to be a punishing place to be a transgender teenager. Her mom, Emily, has fought to change her name in the high school鈥檚 system. There's no good option for which bathroom to use at school. Emily says neighbors and classmates have made cruel comments.

NPR has agreed not to use the family鈥檚 last name because of concerns for Veronica鈥檚 safety.

Iowa was part of a related to transgender young people in the last two years. Currently, 26 states have laws on the books banning gender-affirming care for trans teens, and an estimated live in states with bans in effect. Virtually all major U.S. medical organizations, including the American Medical Association and the American Academy of Pediatrics, to gender-affirming care for young people.

Iowa鈥檚 ban took effect in March 2023. Teenagers like Veronica who were in the midst of treatment had a few months to find an out-of-state option or stop their treatment.

Veronica鈥檚 mom, Emily (right), says that before Veronica came out as trans, she already knew. 鈥淚 was kind of just waiting to hear 鈥 I wasn't pushing it, but I just knew.鈥
Selena Simmons-Duffin / NPR
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NPR
Veronica鈥檚 mom, Emily (right), says that before Veronica came out as trans, she already knew. 鈥淚 was kind of just waiting to hear 鈥 I wasn't pushing it, but I just knew.鈥

鈥淵ou never think, as a mom, 鈥業 can't wait for my kid to grow up and leave the state,鈥 but that's where I'm at right now,鈥 Emily tells Veronica. It鈥檚 dusk, and they sit next to each other on the couch in the living room, surrounded by pillows. Thin-crust pizzas bake in the oven.

Emily鈥檚 voice catches: 鈥淚 can't wait for you to find your people, your support, your health care providers 鈥 everything you need. I want that for you, even if it's far away.鈥

For now, the family is rooted in Iowa. Veronica is the oldest of four children 鈥 her parents are divorced and the kids are at their dad鈥檚 house in the same neighborhood half the time. All their grandparents live in Iowa, too.

So when Iowa鈥檚 gender-affirming care ban took effect last year, the family made a decision: Veronica and her mom would travel out-of-state every few months to keep getting the care Veronica needed.

Before dawn

The day of Veronica鈥檚 appointment in Minnesota starts before dawn. The residential streets are empty and dark. Cicadas chirp. Inside the house, Emily rushes around 鈥 making sure the younger kids have a plan to get to school, finding snacks and tea bags for the day鈥檚 road trip (she鈥檚 not a coffee drinker). By 6:44 a.m., she is at the wheel of her Jeep, with Veronica riding shotgun, headed for the interstate. They have almost four hours of driving ahead of them to get to the clinic.

To arrive on time for an 11 a.m. appointment in Minneapolis, Veronica and her mom leave Iowa just after dawn. An estimated 110,000 transgender teenagers live in states with health care bans in effect.
Selena Simmons-Duffin / NPR
/
NPR
To arrive on time for an 11 a.m. appointment in Minneapolis, Veronica and her mom leave Iowa just after dawn. An estimated 110,000 transgender teenagers live in states with health care bans in effect.

Mom and daughter have catching up to do 鈥 where Veronica went when she snuck out a few months ago, how she talked her way out of a speeding ticket, what music to play in the car.

鈥淚t's good,鈥 her mom, Emily, says. 鈥淥ne-on-one is hard with four kids.鈥

Before Veronica even came out as trans, her mom sensed it. She remembers the specific moment 鈥 a transgender woman came and spoke to a class she was taking in 2017. 鈥淚t was like I was hit by a bolt of lightning. I was like, 鈥楾his is my child. I know this in my soul, in my heart,鈥欌 she remembers. 鈥淚 was kind of just waiting to hear 鈥 I wasn't pushing it, but I just knew.鈥

Veronica鈥檚 mom wanted to support her wholeheartedly when she came out as trans, but she was also scared. 鈥淭he mom part of me that felt so afraid of the targeting, the bullying and all these terrible statistics for this marginalized group,鈥 she says. Here, a recent holiday card, picturing Veronica, is stuck to the fridge.
Selena Simmons-Duffin / NPR
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NPR
Veronica鈥檚 mom wanted to support her wholeheartedly when she came out as trans, but she was also scared. 鈥淭he mom part of me that felt so afraid of the targeting, the bullying and all these terrible statistics for this marginalized group,鈥 she says. Here, a recent holiday card, picturing Veronica, is stuck to the fridge.

Years passed. Quietly, Veronica told her friends that she is trans in 2020, right as the pandemic was starting. 鈥淚 kind of just held it between me and them during that time,鈥 she says. 鈥淚 wanted to be sure about it, you know? I didn't want to jump into something that I wasn't sure about and, like, tell everyone and then it's like, 鈥極h, wait, never mind.鈥欌

A year later, she was ready to tell her family members: 鈥淚 was like, 鈥極K, it's been a year. Nothing's changed. I don't think it ever will.鈥欌

She started eighth grade with her new name.

Even though her mom was expecting it, 鈥渨hen you came out to me, I had such a mix of emotions,鈥 Emily tells Veronica. 鈥淚 had this part of me that was like a cheerleader, 鈥楲et's do this. Let's get the flag in the yard.鈥 And then there is the mom part of me that felt so afraid of the targeting, the bullying and all these terrible statistics for this marginalized group 鈥 it was scary.鈥

She also had grief she needed to work through, she realized. 鈥淭his is my oldest child, who's also at the same time entering into this adolescent stage 鈥 so I am grieving my baby boy on a couple different levels.鈥

鈥淲as that hard to hear?鈥 Emily asks, and Veronica answers, 鈥渁 little.鈥

A pause

Iowa is where Emily grew up, and where she moved to raise her own family. Then her home state started to pass laws affecting her family. In March 2023, the state passed a law dictating which bathroom students can use at school, and another banning gender affirming care for minors.

"We need to just pause, we need to understand what these emerging therapies actually may potentially do to our kids," Iowa Governor Kim Reynolds right before she signed the bills into law. "My heart goes out to them. I鈥檓 a parent, I鈥檓 a grandmother, I know how difficult this is. This is an extremely uncomfortable position for me to be in. I don鈥檛 like it. But I have to do what I believe right now is in the best interest of the kids."

 A field in Iowa, a scene on the long drive to Minneapolis for Veronica and her mom, Emily.
Selena Simmons-Duffin / NPR
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NPR
A field in Iowa, a scene on the long drive to Minneapolis for Veronica and her mom, Emily.

When Iowa鈥檚 ban took effect, Veronica was taking puberty blockers. By that point, she had been out as trans to her friends for three years 鈥 out to her parents and siblings for two. She had also developed an eating disorder so severe she has gone to residential treatment twice.

Her mom Emily thinks these two challenges are related. 鈥淚 wonder if 鈥 just knowing that you don't want to use the bathroom [at school], and so then the way to avoid using the bathroom would be not to drink and not to eat during the day.鈥

Veronica shrugs. 鈥淚 think they were just both happening simultaneously, separately,鈥 she says.

Regardless, the past few years have been difficult for her. 鈥淪truggling with an eating disorder, on top of that, having gender dysphoria 鈥 it's like two things just working together to ruin you,鈥 Veronica says.

The "pause" in gender affirming care, as Iowa's governor put it, was at odds with Veronica's own biological timing. After the ban became law, the family got a message from the clinic explaining that they needed to stop Veronica鈥檚 gender care. Her doctors said if she couldn鈥檛 find a way to keep getting puberty blocker shots on time out of state, she would have restarted testosterone-driven puberty. That would have meant bodily changes like voice deepening, the growth of her Adam鈥檚 apple, facial hair, shoulder-broadening and more 鈥 some of which could be changed later with surgery or other procedures, some of which would be permanent.

Emily says her family鈥檚 path forward was always clear to her. 鈥淚t was just never a thought that we wouldn't continue,鈥 she says. 鈥淎s your mom I鈥檓 going to do everything I can to help you 鈥 I love you.鈥 The idea that legislators are making medical decisions for her family 鈥渄oesn't seem right,鈥 she says.

During their third trip to Minneapolis for Veronica鈥檚 doctor鈥檚 appointment, Emily and Veronica talk about what it feels like not having access to care in Iowa. 鈥淚 see it almost like a necessity,鈥 says Veronica. 鈥淣ot having access to it just seems terrifying.鈥
Selena Simmons-Duffin / NPR
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NPR
During their third trip to Minneapolis for Veronica鈥檚 doctor鈥檚 appointment, Emily and Veronica talk about what it feels like not having access to care in Iowa. 鈥淚 see it almost like a necessity,鈥 says Veronica. 鈥淣ot having access to it just seems terrifying.鈥

鈥淚 see it almost like a necessity,鈥 Veronica adds quietly. 鈥淣ot having access to it just seems terrifying, in a way.鈥

Their support network in Iowa helped. 鈥淚 ended up with a list of resources, a couple of them, actually,鈥 Emily says. 鈥淚t was a Facebook, Zoom, call-to-action sort of thing.鈥 She called around until she found a new pediatrician in Minneapolis who could take over Veronica鈥檚 gender treatment.

The first order of business was continuing puberty blocking shots, which she needs to get at an in-person appointment every few months. Then, in December of last year, her new doctor started her on hormone therapy. She started taking daily pills of estradiol, a type of estrogen, while she continued getting puberty blocker shots to keep her testosterone levels down. Since then, she鈥檚 essentially been going through female puberty.

September鈥檚 appointment was their third one in Minneapolis. Her mom thinks intervening now will help Veronica look more like someone who was born female when she鈥檚 older, which will hopefully make her safer 鈥 less likely to be the target of violence or discrimination for being a trans person.

Veronica is really happy with all of it. 鈥淚 feel like it's helped me feel a lot better about my body,鈥 she says, 鈥渁nd made the eating disorder less prominent in my life.鈥

Emily says she鈥檚 noticed. 鈥淚 just feel like your trend has just been up and up and up since you鈥檝e started your estradiol,鈥 she says. 鈥淵ou're much more social and out and about with friends, you're not home in your room as much. You seem happier. You're not picking at your little brother all the time.鈥

鈥淔eeling good?鈥 鈥淒efinitely.鈥

More than three hours into the drive, the cornfields give way to warehouses and, eventually, high rises as we arrive in Minneapolis.

Veronica鈥檚 Minneapolis pediatrician takes her blood pressure. During the appointment, Veronica receives a puberty blocker injection and a refill of her prescription estrogen pills. Emily is wearing a t-shirt that says "Protect Trans Kids" under her jacket.
Selena Simmons-Duffin / NPR
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NPR
Veronica鈥檚 Minneapolis pediatrician takes her blood pressure. During the appointment, Veronica receives a puberty blocker injection and a refill of her prescription estrogen pills. Emily is wearing a t-shirt that says "Protect Trans Kids" under her jacket.

In the exam room, Veronica sits cross legged on the paper-lined exam table 鈥 her doctor starts by checking in with her 鈥 about her friends, her after school job, school. NPR has agreed not to name the clinic or doctor because of their safety and security concerns. He asks about her eating disorder recovery and whether she has enough support with that. He takes her blood pressure and other vitals.

鈥淗ow is estrogen going?鈥 he asks. 鈥淕reat,鈥 she beams.

He asks if she鈥檚 noticing effects 鈥 if the medication is doing things, 鈥渁nd those things are the things that we want and we鈥檙e feeling good?鈥

鈥淒efinitely,鈥 she answers.

He asks about side effects, and she says she hasn鈥檛 noticed any. 鈥淎ny change in overall goals?鈥 he continues. 鈥淪till feeling like this is what we want, this is making life feel more tolerable, and feeling better in my skin, all that kind of stuff?鈥

鈥淥h yeah,鈥 she says.

鈥淭hat's awesome,鈥 he says. 鈥淭hat's the hope.鈥

She heads to another room for a blood draw and the puberty blocker shot, which is a painful injection, given with a large-gauge needle into her leg. She asks to hold her mom鈥檚 hand for that part.

Veronica鈥檚 pediatrician says he鈥檚 pleased with how her gender care is going. 鈥淪he is having the result that we hope she would have, which is feeling more peace with her body and being seen by people the way that she sees herself and wants to be seen,鈥 he says.

Not all gender diverse teens want these kinds of medical interventions, he notes. 鈥淭he medical piece of gender care is all driven by patient goals and embodiment goals, and the truth is, not everybody wants this kind of binary transition.鈥

In Veronica鈥檚 case, her vital signs and mental health have also improved since her appointment in the spring. 鈥淪he's doing well 鈥 in an ideal world, I would see her more often, but it is a burden [for her] to get here,鈥 her doctor says.

Three of the four states bordering Minnesota have gender affirming care bans for youth 鈥 Iowa and North Dakota and South Dakota. Minnesota has gone in the opposite direction. Minnesota鈥檚 legislature passed a last year, and since then, and their families have moved to the state.

But not every family can move. Even traveling for appointments is difficult, with airfare or gas expenses, hotels, taking time off work.

For Veronica鈥檚 family, moving is not possible, but traveling is, although it鈥檚 grueling. Her doctor says that she is one of 15 patients he鈥檚 currently treating for gender dysphoria who travel in from out-of-state.

Her mom says part of what makes the travel tolerable is that Veronica will turn 18 next summer. 鈥淭hen hopefully she can have more freedoms and have more access in Iowa, assuming that the laws don't change before then.鈥 At the moment, gender affirming care for adults is legal in Iowa.

鈥淟ong day鈥

After about 45 minutes at the clinic, Veronica is all done with the appointment. She and her mom stop at a Minneapolis pharmacy to pick up a six month supply of estrogen pills. They aren鈥檛 allowed to get the refills in Iowa because of the health care ban.

Then, it鈥檚 back in the car and back on the highway to go all the way back to Des Moines. They both seem relieved to have the labs done and refill in hand.

Before long, Veronica leans against the window and falls asleep. Along the highway, the 鈥淲elcome to Iowa鈥 sign appears. Emily notes the tagline on the sign is 鈥淔reedom to Flourish.鈥

Veronica sleeps on the way home on the 450-mile roundtrip. It's a 10-hour day, but both Veronica and Emily say it is worth it. The pediatrician says Veronica "is feeling more peace with her body.鈥
Selena Simmons-Duffin / NPR
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NPR
Veronica sleeps on the way home on the 450-mile roundtrip. It's a 10-hour day, but both Veronica and Emily say it is worth it. The pediatrician says Veronica "is feeling more peace with her body.鈥

鈥淪hould have a little asterisk by it,鈥 she murmurs.

More interstate, more cornfields, more hours. 鈥淚t's so boring, I鈥檓 just ready to be done,鈥 Emily says. Veronica wakes up and bugs her mom to drive faster. She鈥檚 pleased her leg doesn鈥檛 hurt from the shot, but she thinks it probably will tomorrow.

Finally, they reach their exit. Veronica starts putting her sneakers back on. They pull into the driveway, and she bolts out of the car. She鈥檚 off to meet up with friends.

As soon as she gets home, around 5 p.m., Veronica leaves to meet up with friends. They don鈥檛 have any particular plans, she says. 鈥淲e'll figure something out, we always do.鈥
Selena Simmons-Duffin / NPR
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NPR
As soon as she gets home, around 5 p.m., Veronica leaves to meet up with friends. They don鈥檛 have any particular plans, she says. 鈥淲e'll figure something out, we always do.鈥

Emily climbs out of the car more slowly, gathering together cups and snacks. They鈥檝e been gone for nearly ten hours and traveled 450 miles. 鈥淟ong day,鈥 she sighs.

Big picture, she says, it鈥檚 worth it. She鈥檚 happy to do it for her daughter.

Copyright 2024 NPR

Selena Simmons-Duffin reports on health policy for NPR.